Talk Lipoedema

We are the UK's first charitable support group for Lipoedema, established run by sufferers and established

We’re here to provide benefit to sufferers of lipoedema and their carers through participating in various projects and increasing awareness of the disease. Whether you’ve just been diagnosed or are a long time sufferer, we’re here to support you. We’re based on one simple premise – that talking about lipoedema is a good thing and will benefit sufferers worldwide.

Talk Lipoedema is a UK based organisation active in England, Wales and Scotland and Northern Ireland. Whereas its focus is on providing benefit to those suffering from Lipoedema in the UK, it seeks to encourage input from international Lipoedema sufferers and to participate in projects that might benefit people with Lipoedema worldwide.

We will provide advocacy and support to those living with Lipoedema, their families and carers, by signposting to services, establishing support groups, and providing a source of information both online and by telephone.

We will deliver workshops, training and information packages which raise awareness of the condition and its effects amongst both the general public and the medical profession.

Also supporting wherever possible, the development of medical research into the condition through such means as partnerships, fundraising, and the dissemination of accurate research findings to the wider community.

We will also undertake social research into the effects of Lipoedema on the quality of life of those suffering with the condition, and to act upon findings to campaign for greater awareness and support.

Come and join us!