The EVOC Red Book

The online directory to find third sector Organisations, and their services across Edinburgh


Directory of local groups/projects who are offering specific support during the current COVID-19 pandemic »

In line with Government advice, most groups and organisations in the city have had to take the unfortunate decision to suspend face to face and group work activities. Please telephone or email the contacts listed for the group or organisation if you are interested in their work to check what alternative arrangements might be available or to find out about alternative groups or services in your area.

Organisation Details

Address 7 Rutland Court Lane, West End
Post Code EH3 8ES
Locality South East 
Telephone 0800 031 5793 (option 1)
Social Networks facebook icon   twitter icon  
  • Advice/Information
  • Advocacy
  • Family Support
  • Health
  • Help Lines
  • Learning Disability
  • Physical Disability
  • Self Help/Support
  • Young People

Kindred is a parent-led organisation. We ensure that 50% or more of our trustees are parents of children with disabilities, and currently
10 of our 12 staff are parents of children with disabilities and long term conditions. Since being established in 1991 Kindred has ensured that every decision about service delivery and direction are taken from the perspective of a parent.

Last year we supported over 880 families over our services, which include:

- A team at the children’s hospital in Edinburgh
- A team in Glasgow dealing with complex and life limiting conditions
- A community team in Fife
- a Telephone Helpline

Kindred provides practical information, advocacy, emotional support and guidance. We support families of severely ill and/or disabled children to:

- Come to terms with their child’s diagnosis and implications for the future
- Understand their child’s limitations – and/or pain – and/or challenging behaviour
- Learn new skills to care for a disabled child at home
- Apply for necessary disability benefits, equipment and home adaptations
- Find the right school and learning support
- Cope with bereavement.

In addition to advocacy and information we are very aware of the emotional support needs of families and the impact on parents and siblings of caring for a disabled child. Intrinsic to our ethos and service to parents is upholding and promoting the rights of all children as set out in the United Nations Convention for the Rights of the Child (UNCRC).

Kindred has worked hard to develop professional standards in all aspects of our work including monitoring and evaluation, governance, external human resources and financial management. We are a unique organisation with high standards of delivery, whilst remaining very much in touch with the needs of people using our service.

Our organisation’s history:

Kindred started supporting families in 1991, as an information point at the Royal Hospital for Sick Children Edinburgh. At that time we were known as the Special Needs Information Point (SNIP). From 1991 – 2007 we continued to work from an office in Rillbank Terrace, mainly providing support to families at the hospital.

In 2007 we were successful in securing a Big Lottery Fund grant of almost £1,000,000 over five years. The Lottery grant led to expanding the team to 14 members, including a team in Fife. We changed our name to Kindred Advocacy in 2010 in order to widen our appeal. Kindred currently supports 800 – 900 families a year.



Name Telephone Cost Actions
Advocacy 0800 031 5793 More info »
Exceptional Families Project 0800 031 5793 More info »
Helpline 0800 031 5793 More info »
Kindred at Edinburgh’s Royal Hospital for Sick Children 0800 031 5793 (option 2) More info »