Kindred

Kindred is a parent-led organisation. We ensure that 50% or more of our trustees are parents of children with disabilities, and currently 10 of our 12 staff are parents of children with disabilities and long term conditions. Since being established in 1991 Kindred has ensured that every decision about service delivery and direction are taken from the perspective of a parent.

Kindred provides practical information, advocacy, emotional support and guidance.

We support families of severely ill and/or disabled children to:

- Come to terms with their child’s diagnosis and implications for the future
- Understand their child’s limitations – and/or pain – and/or challenging behaviour
- Learn new skills to care for a disabled child at home
- Apply for necessary disability benefits, equipment and home adaptations
- Find the right school and learning support
- Cope with bereavement.

In addition to advocacy and information we are very aware of the emotional support needs of families and the impact on parents and siblings of caring for a disabled child. Intrinsic to our ethos and service to parents is upholding and promoting the rights of all children as set out in the United Nations Convention for the Rights of the Child (UNCRC).