||7 Rutland Court Lane, West End
||0800 031 5793 (option 1)
- Family Support
- Help Lines
- Learning Disability
- Physical Disability
- Self Help/Support
- Young People
Kindred is a parent-led organisation. We ensure that 50% or more of our trustees are parents of children with disabilities, and currently
10 of our 12 staff are parents of children with disabilities and long term conditions. Since being established in 1991 Kindred has ensured that every decision about service delivery and direction are taken from the perspective of a parent.
Last year we supported over 880 families over our services, which include:
- A team at the children’s hospital in Edinburgh
- A team in Glasgow dealing with complex and life limiting conditions
- A community team in Fife
- a Telephone Helpline
Kindred provides practical information, advocacy, emotional support and guidance. We support families of severely ill and/or disabled children to:
- Come to terms with their child’s diagnosis and implications for the future
- Understand their child’s limitations – and/or pain – and/or challenging behaviour
- Learn new skills to care for a disabled child at home
- Apply for necessary disability benefits, equipment and home adaptations
- Find the right school and learning support
- Cope with bereavement.
In addition to advocacy and information we are very aware of the emotional support needs of families and the impact on parents and siblings of caring for a disabled child. Intrinsic to our ethos and service to parents is upholding and promoting the rights of all children as set out in the United Nations Convention for the Rights of the Child (UNCRC).
Kindred has worked hard to develop professional standards in all aspects of our work including monitoring and evaluation, governance, external human resources and financial management. We are a unique organisation with high standards of delivery, whilst remaining very much in touch with the needs of people using our service.
Our organisation’s history:
Kindred started supporting families in 1991, as an information point at the Royal Hospital for Sick Children Edinburgh. At that time we were known as the Special Needs Information Point (SNIP). From 1991 – 2007 we continued to work from an office in Rillbank Terrace, mainly providing support to families at the hospital.
In 2007 we were successful in securing a Big Lottery Fund grant of almost £1,000,000 over five years. The Lottery grant led to expanding the team to 14 members, including a team in Fife. We changed our name to Kindred Advocacy in 2010 in order to widen our appeal. Kindred currently supports 800 – 900 families a year.